end of the rope

I am underwater, senses dulled and utterly alone. I am aware of nothing but the bitter bite of cold that sinks into the bone and fills my lungs as I try to draw breath and suddenly all is light and beauty. And then I am awake, glad to feel Geoff’s presence by my side and feel the heat emanating from his sleeping form. I feel the weight of my little cat, posed perfectly between us, and for a second my heart is full of love for my husband and our sweet pet but finally the bad feelings rush through my blood and there is nothing but the sting of grief and pain.

I am committed to at least one more cycle with Femara, understanding that it’s a foolhardy choice. I cannot go on indefinitely, stumbling through the inevitable darkness it brings and keeping my head held high in defiance of Fate. As much as I long to hold my own child, I will not kill myself trying when I have Geoff’s love to honor and cherish. I feel his hope slipping as well — I think he’s lost as much faith in my body as I have. He’s still here, at least, although he could easily leave for a woman, perhaps much younger, with ovaries of gold and platinum and a womb that is perhaps not twisted with theorized destructive scar tissue. I am stymied as to why he stays with a sick woman when he has so much to offer a woman more deserving, someone who, perhaps, is not a professional mental patient and has far more to contribute to the grand love affair of which he is capable.

I walk around feeling like there is a knife piercing my heart.

I just returned from my therapy, where I did not utter a word about my disdain for the House Intelligence Committee, the firing of Rex Tillerson, the appointing a torturer to run the CIA. I spoke only of my anger at the things that have happened to me, how deep it cuts, how much I am struggling with it and how cold my loved ones have become. Of how the mornings are okay, but as the day slips by I sink deeper into hopelessness and despair. And finally, about how bitterness is eroding the good parts of me, leaving me as cold as those I condemn.

There is smoke in the air and I think, something is burning but of course it is not, it is just what therapists used to refer to as an overly active imagination but is now diagnosed as psychosis. I turn my attentions elsewhere and the panic recedes.



bad night

I had a really bad night last night. At bedtime, I wasn’t sleepy at all, which was bizarre because my medication usually knocks me out for a couple of hours. I found myself tossing and turning next to Geoff’s sleeping form. All of the sudden, I was lost in thought. I enjoy being lost in thought, but usually avoid allowing myself that luxury nowadays because I have so many horrible things going through my brain at any given time, it’s just too dangerous emotionally. I usually distract myself by playing on my phone or computer instead.

But suddenly, I was daydreaming about having a baby. Such vivid thoughts, I could feel her in my arms and it was Molly and she was alive and healthy, my parents there cooing at her, the in-laws, too; I felt rhapsodic and so happy and at peace. It was the way things were supposed to be and it was perfect.

Except I had the nagging thought that something was wrong. Bitter Kathleen does not indulge in fantasies of success. I often reflect on how miserable our most-likely childfree life will be, feeling all the fear and pain and rage until I have to take my benzos and lay down on the couch. But I felt this delicious relief daydreaming of my happy ending, a euphoria I could feel deep down in my bones. All this, while knowing for certain that my first torturous cycle of letrozole after miscarriage has failed, and that I may not get anymore chances.

Suddenly I broke into a sweat and started shivering. I had to pee every five minutes. It was getting later and later, Geoff was blissfully asleep and snoring, and I closed my eyes. In my imagination, my tiny bedroom became a ballroom, with faceless and formally attired people waltzed and spun across the dance floor. And I opened my eyes and they were outside my head, my bedroom was transformed and the faceless people whirling across tbe floor, and I knew I must have missed a dose of my antipsychotic and I didn’t know how. I thought I’d lay there until my little cat came in to wake Geoff for his middle-of-the-night meal (don’t ask…Wendall is my cat, spends all day with me and ignores Geoff — except at 1am, he wants Geoff to feed him and not me). And then I was definitely hearing voices screaming and music blaring and I was scared so I woke up my grumpy husband.

“I don’t know how, but I missed a dose of Geodon and I need to eat something and take another 60 mg,” I told him as calmly as I could. Yogurt and honey appeared, and I took a pill. I planned to take another 20 mg every half hour until I could sleep.

When we woke up this morning, it turned out my 120 mg bedtime dose of Geodon was still in the pillbox. It was a relief knowing that I was right in assuming I had missed a dose. That cold sweat I was experiencing is always the number one indicator that I’m behind on my meds — I’m such an addict, I get withdrawals from Tylenol.

It amazes me how crazy I went so fast after missing a dose. It’s scary as hell that I am so dependant on it, how it’s the one outpost between me and sanity. But it worked out. Just another day in a life with schizoaffective disorder. And all the terror was worth it, because I had such a beautiful daydream before things came off the rails…

Molly. I keep on living because of you. But it might kill me in the end.


I fucking hate people. Like, I really fucking hate them. My therapist constantly tells me I need more social support but it’s not like I haven’t tried. I don’t think normal people give a rat’s ass about infertility and recurrent pregnancy loss and the resultant PTSD. It doesn’t seem like a big deal to them, they don’t want to hear it. They don’t want to know what it’s like living with schizoaffective disorder. They just want me to act like normal Kathleen.

Am I too self-obsessed, self-indulgent? Is it selfish of me to want to have my friends be interested in what my life is like? Are there more caring people out there that just pass me by? Honestly. I am not suicidal, but in these three years of he’ll thoughts have definitely flirted through my mind. I honestly think some of the remarks I’ve heard from people that supposedly care about me could make a less secure person take the plunge, twist the knife in. And it’s bullshit.

When you’re as sick as I am, everything is a life or death situation.


I feel a tremendous compulsion to understand why people don’t seem to give a shit.

8dpo with ptsd

8dpo: I seem to really be back to normal, meaning that I barely slept and I didn’t cry over a super triggery post on Facebook that left a good friend unfollowed this morning. I’m cranky, but it’s regular cranky and not Femara-induced rage. Scruffy is nowhere to be found; he must be off on a bender somewhere and I don’t even care because at least it is finally quiet in my head.

I don’t understand how infertile women can finally get pregnant, and then just have a happy pregnancy that leads to a healthy child. All the times I really believed this was finally my time, that the Universe had finally granted me a pass, only to hear “sorry, no heartbeat”, often from insensitive medical personnel who just wanted to get rid of me and get on with their day’s work with happier patients and circumstances…

It’s fucking as unfair as shit.

And for some reason when I started this cycle, I expected the Femara to work like it did before, but now I’m all wtf was I thinking? laughing, shaking my head and turning up X-ray Spex as loud as I can without attracting property management. The lawn mower guy is here, giving me a bit more leeway for volume.

Oh, good, the triggery situation just got way worse, because of course I made it worse by getting triggered. Am I going to be fucked up for the rest of my life? I text Geoff, who instructs me to take my temazepam. I wonder if it will work, if it’ll work for the rest of eternity as I sit damaged in my living room with only emptiness in my uterus and cracks in my heart. I feel like calling my psychiatrist and screaming at her to fix me, but that usually ends up with me incorrectly diagnosed with “atypical manic disorder”, which is this thing my psychiatrist apparently made up just for me when I yell at her. My therapist looked it up once in the book of ICD codes, but all it had was “atypical measles”.

My little cat tries to snuggle up, completely unaware that I’m sort of upset with him for smashing my favorite serving dish during the night. Oh, well. I hold out my hand and he snuffles at it, edging in so he’s resting on my belly. Is this all there is for me?

And the depression is real and tangible and I know it’s not the Femara and I’m just fucked.


2.17 PM, and I’ve forgiven my little cat for smashing my dish and lay here wrapped around his warm little body as he makes contented grunting noises and leans all his weight into me. I feel anchored, secure. I know he’ll be with me here until his dinner time and there is nowhere I need to go.

It’s been a difficult day. I think of the past three years, have I really been pregnant four times and lost four babies? Did I really drive all my friends away, probably forever since I don’t think the flashbacks are ever going to stop? My therapist scoffs at trauma therapy and EMDR and Transcranial magnetic therapy — is she wrong about all of it? (Tbh, these things do sound pretty silly to me, but what if they work?).

I can’t emerge from this chrysalis of grief. I need to nourish my body, rest my mind. I’m listening to X-ray Spex on repeat and I wonder if I should put on The Rachaels or Low or something nice, lie back, put my phone away. I idly wonder if my fruit of the month will arrive today (my aunt gave me a membership to a fruit of the month club for Christmas and last month the oranges were so delicious), saving me the trouble of thinking up something healthy to eat. I really didn’t sleep much last night.

I wonder if I’ll ever feel at peace again.


Same thing every damn day. Me, on the couch snuggling with my little cat; husband off trying to get in an hour and a half of the social contact I make so difficult (I am a pathological introvert who is not doing well, and he is healthy and gregarious but loyal to a fault and doesn’t like to leave me when I’m not feeling good). I am in a foul mood, depressed and irritable and it just won’t lift. I suspect it’s the Femara wreaking havoc on my hormones, although not actually producing ovulation — but my usually-clear complexion is covered in acne, I found a hair on my chin the other day, and my uterus has been tingling as it does when I’m expecting my period or about to miscarry. My cycle is fucked, which may be contributing to my grouchiness; or, I could be reacting badly to the bump in Paxil. Or, I could be embarking on some sort of mixed mood episode, though my symptoms aren’t florid enough for me to alert my care providers.

I mean, okay, I had my usual CM pattern that coincided with a positive OPK but no sustained temp rise. Will I have another LH surge, or do I have a follicle that for some reason didn’t release the egg so I’ll get a cyst? Was my CD 1 really CD 1?

I’m tired of being always beholden to my moods and ovaries. The voices chatter in the background, and the content of what they tell me reflect my mood state. They laugh at my infertility, suggest I hurt myself. If you hear voices like I do, the number one rule to living with them is to not listen to what they say to you (number two rule is to not talk back to them in public). Easier said than done, but medicated me can keep them in the background and, say, not go running of to a new city without telling anyone where I’m going, not cut stars and hearts into my skin, not start shit with the cops. I’ve been living with auditory hallucinations all my life and they break through my antipsychotic (Geodon). I can’t imagine a life without them, but I’ve adapted to them pretty thoroughly.

I sent Geoff off into the world so I could have some alone time, but now I’m eager for him to return. I’ve taken my temazepam and it’s kicked in much harder than usual and I have those delicious chills it gives me after about a half an hour after swallowing the pill. I want to curl up in his arms and feel the heat of his heart.

Even when I feel stabby and toxic, I still would rather not be alone.

the lunatic infertile attempts to de-compartmentalize

It’s a chilly morning and a rushing sense of desolation hit me the second I opened my eyes. I am on my trusty vintage mid-century couch with longings for a few minutes of oblivion. I mark “depression” on my mood chart, and consider asking my shrink for another increase in my Paxil dose. I pop a temazepam, try to relax with my little cat but fear of the future outweighs the delicious hazy feelings that hit a few minutes later. I figure I’ll spend the day working on my book (yes, I’m writing a book), trying not to let myself be sucked into infertility forums. I really should work on my typewriter, a pain in the ass to write on but devoid of the distractions built into my trusty laptop. I don’t know, maybe I’ll push myself into some sort of mindset that allows productivity. But as the tranquilizer sets in, I have my doubts.

I messaged my RE about my spotty on-and-off period. I dread the response. Retained tissue from my D&C? Uterine adhesions? A healthy and enthused uterus was all I had going for me with my problems stemming from my shriveled and blackened ovaries, and as my fortieth birthday draws nigh, I’m afraid I’ll have new problems that will prove insurmountable. The thought of a damaged uterus is weighing so heavily on my mind that I fear if the nurse calls me back, I won’t answer the phone. And the thought of having to deal with another appointment right now sends a fresh wave of anxiety over my slightly sedated form.

I have a confession. Sometimes I feel like if I can’t get pregnant, a lifetime of twice daily benzodiazepines may not be the end of the world. But then I remember the joyous rush I feel when my uterus is trying to grow a baby and have to grudgingly admit that yes, I would prefer to be pregnant, even if it’s again short-lived. Those couple months before the agony of loss feels twenty million times better than the brief moments of a tranquilizer rush. I must not forget that, as my sobriety hinges on it.

I wonder briefly if my last two entries detailing the story of schizoaffective disorder in my life has frightened people away from my blog. I kind of have a lot going on and have trouble telling an integrated tale of both life as a permanent mental patient, and the hopeless cycle of infertility and pregnancy loss I have been living with for three years. I’m scared of judgment, of my friends speaking in hushed tones of how a sickie like me has no right having a child of her own, of the perceivable risk I’ve accepted of my passing my illness to any offspring. Let me tell you: life with a psychotic disorder is an arduous path, but at no point has my illness made life not worth living. And there are some marvelous treatment options these days that could help a potentially afflicted child lead a valuable life. And I, as a woman with a tiny potential of becoming a mom, am functional! I think motherhood is a realistic option for me and yes, it will be a challenge but I’m a fighter and I’m ready to tackle the difficult task of raising a child I likely won’t even have.

I think I may ask for that bump in Paxil after all. It seems to help quell both the anxiety and the depression, and my dose is still very low.

I’m expecting ovulation to be late this month. I’m wrestling with barely perceptible test lines on my trusty Wondfo opks at CD 11, so I’m freaking out that maybe I won’t ovulate at all. Miscarriages fill me with grief, and they usually fuck up my cycle for a couple months and I have no time for any bullshit.


Moodiness and depression…I’m now willing to accept that my current state of mind is induced by Femara. Nasty stuff these fertility meds are. I can’t help but wish Geoff were here to mollycoddle me through my misery, but I’m also glad to know that for five more hours, he won’t be subjected to my flights of mood and fancy. Still, I’m lonely here in my apartment as I procrastinate working on my stories and tackling the housework I’ve been neglecting. But…

…what, pray tell, is the evolutionary purpose of living decades longer than your own fertility?

My mind is a jumble. I’m having some combination of a midlife crisis and an existential one. Taking a shower before Geoff gets home seems akin to climbing Mt. Everest and I am baffled at the meager contents of my fridge.

I am completely neurotic, I decide. I can’t get anything done. I have therapy tomorrow so I have to brush the crazed tangle of my hair, or I risk being grilled about how I’m handling my ADLs (activities of daily living)…if there’s question about whether or not I can take care of myself, that warrants evaluation and I don’t wanna deal.

I brush my hair, contemplate doing another opk but my heart isn’t in it and I’ve had a couple cups of coffee.

I take my second Restoril and lie down.

schizoaffective disorder, part III & recovery


A manic break, like I had in my first year of college, is what separates bipolar I from bipolar II. Bipolar II patients have hypomanic episodes in which one may experience elevated mood symptoms without quite the level of impairment that a full-blown mania imparts. I knew something significant had happened to me, I knew I had lost my fucking mind — possibly tipped off by other students, the school counselor had been after me, but I managed through dumb luck to evade her. I was definitely impaired enough to warrant hospitalization, even involuntary commitment, but by the time the men in white coats came for me I had crashed. A Tylenol overdose is serious, and I had waited three days to inform anyone I had done it, thus damaging my liver and landing me on the transplant list. After three days, I figured that I wasn’t going to die and I had started vomiting. Since our dorm had one community bathroom it seemed I couldn’t go unnoticed for too long, and I called 911.

Depression can distort your thinking, and I was hearing my voices ordering me to kill myself and was convinced my dormmates were plotting to kill me as well. I was absolutely terrifying. I had no toehold in reality; I was fully psychotic with both auditory and visual hallucinations and suffering paranoid delusions, and and my actions made complete sense to me at the time. I felt like I was nothing but a lunatic who would do nothing in life but drain the planet’s resources, and that everyone I loved secretly was hoping I’d die as well. Remember that when you accuse the suicidal or suicide victims of weakness, selfishness, and stupidity — I’ve been called all of the above and more from the moment the ambulances arrived, and I feel that’s it’s fucked up to make judgment on anyone’s character when their illnesses actually set these thought processes in motion.

Moving to Olympia was, in retrospect, a very bad idea. As I was misdiagnosed by my own designs — I was not honest with the stream of mental health professionals that suddenly appeared in my life and they missed out on seeing me at all manic. I never fessed up to my psychotic symptoms because they terrified me and I thought I’d be forever institutionalized. I was beginning to see my psychosis for what it was — an aberration, not part if the “normal” experience my friends were having. It was like putting on those purple glasses.

I wrote a lot about depression when I got to Oly because I was mired in it. I immediately realized my Pamelor was mucking me up even worse, keeping me crazier than I’d been without it and it made me extremely irritable, which was hard to live with due to the problems it caused in my relationships and friendships. Walls were punched, drinking glasses shattered. Antidepressants tend to push bipolar patients into mania and it got pretty scary in my head. I decided the pharmaceutical industry was a scam, discontinued it without telling anyone, and became a nice safe depressive again.

I didn’t know how the health care system in our country worked at all. I didn’t think I could get help without my parents knowing about it, and they were already skeevy about my transfer to The Evergreen State College but didn’t know what else to do with me. I remained depressed and suicidal during my time there, but for whatever reason my psychotic symptoms were manageable again. I did a horrible job making friends, because deep down I knew something was desperately wrong with me and that opened a chasm between me and the rest of the student population at Evergreen. Isolation is a huge problem for all those with mental illness, but it tends to be insurmountable as a psychotic. I sludged through a couple of very dark years before finding a general practioner to prescribe the antidepressant Celexa. And I started to feel better. A lot better.

I returned to the general practitioner a couple months later. I had developed an issue in which I was getting recurrent UTIs with no symptoms, and these would eventually spread to my kidneys, so I was frequently in the ER and then in the hospital. My doctor prescribed a prophylactic dose of the antibiotic Macrobid, and told me to take it every time I had intercourse. Since I was wildly hypersexual at the time, I cheekily asked him what’s the most I can take in a single day? He looked very alarmed.

“Has anyone ever told you that you are bipolar?” he asked with panic in his eyes, desperately scanning the pages in my chart (I’m old enough, this was before they had computers). I laughed hysterically, and he switched my Celexa to Wellbutrin. Again, antidepressants will push a bipolar person into mania, and I knew I was crazy again but he eventually said it was just the meds and it would go away with the switch in antidepressants.

And then I got a job as a phone sex operator at a fetish line…

Suddenly, I was having the time of my life. I got to talk to people that were into way crazier shit than I ever imagined. I covered the overnight shift, and stopped sleeping again. I was incredibly successful, as I am with most things I try (save for having a baby, but I’m putting that on the back burner right now). I went off my Wellbutrin and onto Paxil and my mood went from elevated to euphoric to completely grandiose, and in the business of being a phone dominatrix these qualities will serve you well. I somehow got promoted to manager, but my phone calls were racking in so much money for the company I still mostly spent most of my time on calls. When I wasn’t on calls, I was shopping, buying thousands of dollars worth of fetish wear and ridiculous things, like a $75 keychain.

One day, I was speaking to a regular client of mine who was a psychiatrist. Since I was so grandiose and an ardent feminist, I usually refused calls that cast me in a submissive role, but this poor dude was tormented. I’d walk him through horribly sadistic and misogynistic fantasies, and afterwards he would cry and apologize over and over for hurting me. One day, he started asking me a lot of questions and told me he suspected I was schizophrenic or bipolar because I answered very honestly (I prided myself on being completely honest with my clients). He begged me to talk to a doctor, and then apologized even more for traumatizing me. And just then it hit me that I needed serious help.

I might add, becoming a phone sex operator and subsequently a fetish model, was completely out of character for me, a former honor student. And it got worse. I started abusing drugs and alcohol, favoring the euphoria of cocaine and oxycontin, which I would crush up and snort (you can’t do that any more, they’ve added some sort of coagulent so it won’t go up your nose). I met a guy I thought was wonderful, a bipolar man who moved me out of my phone sex job (I actually had been living in my office) and provided all sorts of pharmaceutical enjoyment. He was most likely still married, despite claiming he was divorced. Since I mistook being manic and high for love, I decided I needed to get psychiatric help, since I didn’t want to fuck our relationship up like I usually did with boys. I’d also quit my job in a very dramatic fashion, and was unemployed. I was twenty-two years old.

The drinking and drugging made me very anxious, and very psychotic. I began having daily panic attacks, and couldn’t distinguish my hallucinations from reality anymore. I began having ideas of reference, which continue to this day — these are delusions in which you think every little thing in the universe pertains to you. It’s hard to describe. I go outside, and see a leaf twitch. This appears to signal a man to come around the corner, watching me. His appearance causes a car to drive by slowly and when it passes the driver signals a bush to shake in the wind, and in response a woman exits the building across the street. The whole experience is reminiscent of paranoia, and often will turn into full-fledged paranoid delusions.

The police become a regular fixture in my life. I am often picked up on the street and dragged to the Crisis Clinic in handcuffs, or else I am screaming in my apartment and the neighbors call the police and off I go on another ambulance, or, they manage to deescalate me and life goes on. The police here are well trained in dealing with the mentally ill, and I retain a pristine criminal record and am never brought to jail. Being a small Asian girl with a middle class upbringing, I am lucky in this regard.

My mom starts visiting regularly. I frighten her, one day finding myself unable to stop walking in circles for hours, the next by being unable to move and listening to Leonard Cohen’s Songs from a Room on repeat while screaming that I wanted to die — both these episodes required a visit from the CDMHP (County Designated Mental Health Provider, a woman in charge of evaluating whether or not a person needs to be involuntarily committed). I spend time in the hospital, while my mom sits hopelessly alone in my apartment, as I’m only allowed visitors for an hour a day. She bonds with my cat and ate at Taco Bell (she didn’t know where else to eat as the city was unfamiliar to her).

I am diagnosed with bipolar disorder and given meds. I have freaky reactions to a lot of them, and my new cocktail of pills messes me up even further. I try everything. I admit to my doctor that I hear voices, all the while taking illegal drugs. By now, my boyfriend has left me and I’ve become terrified to leave my house. I stop using coke and oxy, and start taking ridiculous amounts of benzodiazepines, obtaining them dishonestly through my new provider at the low income clinic and buying them on the streets. I continue drinking. Eventually, I am granted disability through Social Security for a diagnosis of bipolar I. The disability determination psychiatrist says schizophrenia would have to be ruled out. I often awaken in four point restraints in the ER, I am hospitalized a couple times.

And then I am prescribed the antipsychotic Geodon…


Despite the major addictions to booze and pills, I start feeling a tiny bit better. The Geodon works fast. I had tried Zyprexa (it made me so confused my boyfriend caught me trying to pee in the trashcan — I really thought it was the toilet), Risperdal and Seroquel both turned me into a zombie and I would fall asleep anywhere — my boyfriend was continually carrying me home from various locales, after being unable to wake me. Within hours of taking my first dose of Geodon I felt sharper, unlike the other pills that seemed to work by dulling all my senses. The psychosis didn’t go away, but it was manageable. My moods stopped swinging, but I didn’t become super depressed. I attempt to regulate my alcohol and tranquilizer habits, but am unsuccessful. I enter a partial hospitalization program at the hospital across the street. I am still agoraphobic, but the hospital is so close to my apartment I am able to drag myself there. My Geodon dosage is increased, and increased again. I make a couple of friends.

Eventually, I am busted and it comes out that I have a dual diagnosis (this means you have both a mental illness and a substance abuse problem). I am sent to outpatient chemical dependency program, where I meet even more friends. Against all odds, I get clean and sober, throwing myself into twelve step work. My best friends from treatment are dead now, one from overdose on painkillers and one from COPD as a result of his smoking. I grieve, I meet new friends. There is a lot of grieving because addiction kills. This is still a reality in my life today. But back the…I was so so young.

My diagnosis is now in question as my care providers struggle with sorting out substance-induced symptoms from my mental illness. I now have Medicare and see my provider at the outpatient psychiatry clinic at the hospital I know so well. My new therapist (the old one was batshit nuts and would just show up at my house to meddle with my medications and bum precious cigarettes, which I could barely afford anyway) is one of the coordinators of the partial hospitalization program and sees primarily patients with diagnosed mental illness, especially psychosis. Initially, I am terrified of her but I learn to talk about things I’d never talked about before. I still experience constant auditory hallucinations, the occasional visual hallucinations and have those ideas of reference, and I’ve accepted that I always will. I’ve actually had them so long, I can’t imagine living without them. I believe that my drug use (especially stimulants) exacerbated my psychosis but there’s no fixing that now; what’s done is done. I also believe that drugs increased my panic attacks — to this day, I still experience them daily. My diagnosis now is schizoaffective, meaning I am bipolar and schizophrenic, but my schizophrenic symptoms are mild compared to other schizophrenics that I have met in recovery. Medication and regular talk therapy have allowed me to retain a good deal of functionality. I am still on disability, but have not had a major mood episode since starting Geodon until recently, when I realized losing four babies had sunk me into depression.

This probably all seems looney tunes to you guys. Sometimes, I cannot believe this is my life — I fucking am psychotic? Wtf? Sometimes I feel more comfortable conversing with the guy on the corner screaming that Mr. Rainier is going to blow up on Wednesday than the average college educated middle class lady who likes the same bands as me and shares my interests in literature and film. I definitely live life differently than I ever expected to, and there is a lot of grief in contemplating what this illness has robbed me of — a satisfying career, solid lifetime friendships, and now a family of my own. But I’m not alone. I have Geoff, and although I may occasionally accuse him of wanting to kill me, he good-naturedly takes care of me on the bad days and is here to celebrate the good ones. Life with a psychotic disorder is not the end of the world. My life is hard, but it certainly is worth living.

Today, I have to take care of myself. I deal with my symptoms by carefully structuring my day. For example, I have to go to bed relatively early at the same time every night. It doesn’t matter If I wake during the night and can’t go back to sleep, it seems, but I need to be able to fall asleep at a consistent time — I don’t know why this is, but it works for me. If I can’t sleep, I contact my prescriber to tweak my meds and start taking long walks in the daytime to wear myself out a little — regular sleep is vital to controlling my moods. Lack of sleep is both a cause and an effect of mania, and I have to be meticulous about my sleep schedule, no exceptions. I can’t travel too many time zones because it takes me about a month to get over jetlag.

I also need to take my medications at the same time each day. Geodon has a short half life, and you need to eat with it so it can absorb. Therefore, I must eat three meals a day at the same time every day or I start getting fuzzy around the edges. In addition, I notice that if I’m not exercising enough (and I’m not talking about anything extreme like CrossFit or anything, just light exercise like walking), my mood plummets.

My rigorous time scheduling can be awful inconvenient, but is essential to my wellbeing. In addition, I attend weekly psychotherapy sessions and track my moods carefully. I’m willing to do all these things in order to stay on planet Earth, even though I must sacrifice spontaneity. My friends don’t really understand when I can’t stay out later to finish watching a movie or something, but it’s something I have to live with.

I realize by posting this, I’m opening myself up to a lot of judgment from friends and strangers alike. I’m willing to take that risk because the mentally ill are getting a pretty bad rap in the press today, and I hope to be one voice out of many. So my backstory is a little seedy. I was young and sick. Despite living with a chronic illness that is really no different than any other chronic illness — well, I’m really just a normal girl that wants what everybody else wants. I live a somewhat dull life, I am clean and sober, I have never posed a threat to others, and I take medication like a diabetic takes insulin. My neurons misfire; my neurotransmitters are unbalanced just like an infertile’s hormones, to use an example part of my readership may understand. Yes, it’s a struggle, but I live an honest life now and have for over a decade. I have achieved a sort of partial remission, and although for the last three years I have been battling grief and trauma, the bottom has not yet fallen out of my mind. But I have to live like it’s always a possibility, which is a burden a lot of you wouldn’t understand. Still, I’ve learned to take care of myself. I think, even if I cannot conceive and carry the baby I want so desperately, I might end up being okay.

schizoaffective disorder, parts I and II


Since I’m so done with pretending to be a fucking unicorn on infertility forums (that Scruffy, he tricks me all the time and I just need consistency), I wanted to talk about my psychiatric diagnosis and how it feels to be schizoaffective, bipolar type. A lot of people have never heard of this disorder, and it sounds rather ominous and intimidating and messy AF, what with the “schizo” prefix and all. But I’m not actually totally debilitated by my condition the way some people are, and I’m glad I get the medical, psychological, and social services to maintain a vague level of remission and normalcy — this is really just good luck for me, I don’t struggle as much as I could. I’m not homeless, like others that are beset with psychosis and although I can’t work right now, if you actually met and talked to me, you wouldn’t necessarily notice my symptoms. I might strike you as slightly odd, but honestly I don’t think that correlates with my diagnosis; that’s just me. If anything, you’d probably notice my anxiety, which may make you feel nervous as well.

A diagnosis of schizoaffective disorder pretty much means you have both a mood disorder and schizophrenia. You can be either bipolar type like me, with episodes of mania/hypomania and depression, or depressive type, with major depressive symptoms but no extreme “ups”. The illness can run very different courses for each individual patient, so it’s sort of a heterogeneous experience that can present in very different ways. Patients are often misdiagnosed with bipolar disorder or schizophrenia before it becomes clear that the two disorders are co-occuring. Schizoaffective disorder affects less than 1% of the US population.

People get wiggly and antsy about the schizo part. Schizoaffective patients suffer psychosis with their mood episodes (like many bipolar I patients have breaks with reality while manic), but also suffer psychosis in the absence of mood symptoms. Psychosis is a scary word with a lot of stigma attached to it — however, it is a medical condition like any other, requiring treatment with medication(s). I take the atypical antipsychotic Geodon/ziprasidone and it works amazingly well for me, although I still have daily psychotic symptoms (manageable) that I’ll probably always live with. Psychosis, by definition, includes hallucinations (auditory being the most common but all the senses can be affected), delusions (false beliefs that to the patient cannot be disproven), and disorganized thinking.

I’ve had mood swings and hallucinations since I was a child. In bipolar children, mood swings can be experienced as temper tantrums and I was somewhat incorrigible in that regard. My parents brought me to many therapists, but I’m old enough to say that when I was a child, childhood mental illness was not a “thing” — all the professionals I spoke with told me my problem was that I was adopted and thus fearful of abandonment. This was patently untrue; I really was never resentful of my adoptive family, I never was interested in knowing my biological family’s identity or history, and my home was safe and secure for me. This line of reasoning totally fucked with my mom, though. I’m pretty convinced she still has lingering doubts about my feelings towards her as a mother. It wasn’t really helpful for me though either, as I did not receive treatment for my actual medical problem, nor was it recognized that I had an actual medical problem with mood dysregulation.

I did not realize as a child that my hallucinations were unusual. I thought everyone had them. The first hallucination I remember was seeing a man pacing around in my room every night. I wasn’t scared; he made me feel safe. My therapist likes to romanticize my New England upbringing and claims I told her I saw Nathaniel Hawthorne in my room — I’m not that crazy, I swear!

I also have always heard at least two voices narrating my life. These voices are not “in my head”. It is not internal dialogue; I hear them through my ears, indistinguishable from a real voice but at this point I can somehow filter them out.

People probably remember me as an odd child, but I navigated life pretty well back then. I was always an honor student and had lots of friends who would perhaps remember me for my impulsivity, but not much else.

I remember the day I realized these experiences were not normal. I compare it to the time I was sent to the eye doctor in the fourth grade, as I also am severely nearsighted. I failed the eye test in a most spectacular manner. The doctor seemed angry. This child cannot see a chalkboard! he exclaimed, There is no way she can be doing well in school. I made all “A”s, and I truly felt I could see the chalkboard (I’m dating myself) just fine.

Until I put on my first pair of carefully selected purple plastic glasses, that is. Um, okay. I guess I really couldn’t see the chalkboard. Like, at all, but had somehow adapted…


I pretty much cruised through adolescence, but not without what would today be considered red flags. I had periods of not sleeping for weeks, followed by crashes into deep depressions. I would stay out all night, and since my sister was undergoing treatment for myelodysplastic syndrome and needing a bone marrow transplant, my mom moved into Boston to be with her at the hospital, while my dad put in fourteen hour days at his fledgling and ill-timed small business. No one noticed I was barely ever home when hypomanic, and when I was depressed I would get to school, wait until my dad went to work and then walk home to sleep all day.

My sister didn’t make it, and passed in May of 1996. I was dragged off to college kicking and screaming in August. The stress and grief were unbearable, and I went crazy. I wasn’t able to make it to my classes — I couldn’t find them, and the map of our small campus was indecipherable to me, appearing like chicken scratches on old yellowed parchment. The thought came over me that I was there for a reason, some divine purpose. I began roaming around, ranting and raving, and was unable to sleep. Oberlin College had what seemed like multitudes of dining halls, and I could never figure out which ones l was allowed to eat at with my dining plan, so I subsisted on Lucky Charms from the quaint little five-and-dime. I spent large quantities of money, somehow, in a tiny town with no retail to speak of, and somehow was under the impression that I was doing just great! My stay at Oberlin was brief. After the manic break, I sunk into the deepest depression imaginable and overdosed in Tylenol. I’ve told that story. I left college in an ambulance, and landed in the psych ward. I was extremely lucky to be alive. Tylenol is a really dangerous drug on which to overdose.

Since Oberlin was demanding I stay two years in a psychiatric facility before they would allow me to rerun, my time in the psych ward was especially terrible. Terrified that I would never be allowed out of the hospital, I did the best I could to maintain a facade of sanity. I didn’t do the greatest job; at one point another patient and I got busted for ordering food from the fanciest restaurants in Cleveland and having a courier deliver it to the looney bin (we somehow pulled this off for four nights straight before our nefarious actions were detected by the overworked staff). The other patient graciously took the fall, though. I emerged with a diagnosis of major depression with psychotic features and was sent home to my parents, who could not afford a residential program for me. I sort of rallied, though I was flying high on the tricyclic antidepressant Pamelor, an older drug (Prozac and SSRIs were new on the market and the doctors in Cleveland told me that Asian people didn’t respond to them, which I’ve never heard since and doesn’t seem to be true). I completed a day program in Salem, MA (also called partial hospitalization). In September of the next year, I said fuck all this shit and moved to Olympia.

day two of letrozole, round four

I have no idea what cycle day it is, as my period is back after a mysterious two day absence, but I took my second dose of letrozole last night. Outside it is cold and snow is quietly drifting down to blanket the Westside in something like purity. I am huddled under blankets, shivering because my Restoril gives me the chills even when it is sunny and warm. My little cat hunches down by my belly. I can barely move. I feel like absolute shit.

I’m just back from therapy, where my therapist reaffirmed my schizoaffective diagnosis. I feel a little disappointed that I’m stuck in such an ominous category, but it’s not really debatable. I rarely have mood episodes since starting Geodon in 2001, but I suffer psychotic symptoms in the absence of mania or depression; hence, “schizo”. I don’t really feel like I’m too crazy these days, but I am always very aware that I do not handle stress well and that this quest for a child could cause the bottom to drop out of my mind. I have to stop if that threat draws near, and I’m wondering about the wisdom of taking oral fertility medication when it has such deleterious effects on my mental wellbeing.

Still, we sally forth. This cycle is probably a bust, and who knows what the next will bring, but I just can’t give up when every cell of my being is screaming to grow a baby. This is what we’re meant to do, they remind me. My ovaries shrug. Good fucking luck, they respond, while surreptitiously rearranging their chromosomes with reckless impunity. I see my egg’s chromosomes fitting together like a puzzle, but the puzzles are assembled by someone who is three sheets to the wind and doesn’t give a fuck.

The Restoril is kicking in, bringing a delicious sleepiness. Most of the time when I feel bad, sleep is the only thing that makes me feel better. But I’m terribly agitated, my thoughts spinning out. In a few days, I will start peeing on sticks, trying to predict my ovulation by detecting the surge of a hormone called LH. Geoff and I have intercourse every other day throughout my cycle, but it’s handy to know we did it in the couple days surrounding ovulation, because that’s what gets you pregnant. It sounds simple, not as harrowing as it actually is. We have been living with our sex life on a schedule for three years — it sure sucks the joy out of fucking, no matter how much we try to change things up, add props, whatfuckingever.

What a drag it is getting old.


and she wakes… + memoir of a tfmr

It’s amazing how much a good night’s sleep can chase away the anxiety and reignite hope. Last night was my first dose of letrozole, and I slept for ten hours straight which is definitely some sort of miracle as I usually can’t even get the three hour block of sleep required to effectively track my basal body temperature to confirm ovulation.

This is so refreshingly familiar to me, the temping and tracking my menstrual cycle, planning intercourse when I’m fertile. I can’t even imagine stopping right now, fortieth birthday notwithstanding. I have been trying to conceive a healthy baby for three years now. It’s become a lifestyle and I’ve become comfortable with grieving and despairing and all the terrible shit that comes along with it. In a way, the sorrow and yes, rage, that accompany my little rituals feels safer than giving up and my addiction to hope brings comfort as well as the pain.

When I am pregnant, even through the terror of loss, I know the suffering is worth it. Only thing is, and this may sound contradictory to the previous paragraph — the pain lasts so much longer than the joy.

I’ve had a lot of readers say that they’re glad I haven’t given up the fight. I have ambivalent feelings about that. Eventually, if I want to save my soul, I will have to give up or I will go mad and that’s not a figure of speech. Oh, “madness” sounds so dramatic and glamorous as compared to the clinical terms my psychologist would use while assessing my illness. Through this entire cycle of hope and desperation, through all my bereavement and the exhilaration of success that precedes grief and torment, I have always been a girl with a severe mental illness. That’s irrefutable; the one constant throughout these miserable years has been my ominous diagnosis of schizoaffective, bipolar type. It certainly gums up the works, the frantic attempts to link up my medication prescriber and my psychiatric obstetrician and make informed decisions about medications, and to assess the risks of medications that make me barely functional.

I am enjoying my morning today, though, and as I know from hard living, today is all I have. This feverish longing for just one baby could destroy me but as of yet, it has not gone away.


For some reason I am rather suddenly remembering every minute detail of my termination for medical reasons, those two horrible days that left me forever changed. These memories, for quite some time, crystallized in my memory until they were a sharp and painful mass that I learned to be able to tuck away safely in some of the squishier parts of my conscious mind, occasional feeling the hard edges and feeling pain, but otherwise moving on. This was after months of sobbing all day and being able to think of nothing else, all the while holding my head high because at the time, I had inserted Molly’s sad story into actual legislative discourse on Planned Parenthood and the controversy of fetal tissue donation and felt my small town was judging me accordingly.

We went to Tacoma for the dilation and evacuation procedure, to a dumpy and squat little building that served as an abortion clinic as our local hospital is Catholic and the abortion clinic in Olympia did not perform second trimester terminations. I felt apprehensive upon our arrival — the neighborhood we drove to was full of shiny new medical facilities and our clinic was a shack tucked into a street full of palaces. There were anti-abortion protesters who were agape upon viewing my small but unmistakable baby bump, and the clinic required you to use an intercom system to gain entry. I was a wreck, and Geoff spoke unintelligible words into the little speaker.

Suddenly, the door sprung open. A black woman hustled me inside, introducing herself as Tanya, the clinic’s grief counselor. I remember being surprised at her title, as my previous experience with abortion was notable for the staff’s indifference for patients and as she guided me through a lobby full of desolate looking women with no grief counselor to reassure them, Geoff remained at the front and I assumed he was taking care of payment details (I think it was $1k but I can’t remember, nor do I know where the money came from — he told me he’d handle it, and he did). Tanya said there were no other second trimester procedures scheduled, and I’d have a waiting room to myself. Upon entering the private waiting room, where there was a worn but comfy couch and a couple chairs, as well as a television, I was given a Valium. Geoff joined us, and he was offered coffee. I, as the patient, hadn’t had food or drink since the night before, since I was having twilight anaesthesia for the procedure.

Tanya held my hand and told me it was best that I start grieving now, while I was there. No problem. She and Geoff both held me as I sobbed and sobbed.

Tanya explained what I would be undergoing that day, and upon my return the next. Forms were signed — I didn’t read them. That day, they would insert laminaria sticks in my cervix to dilate it, but I would be “asleep”, and they would give me an injection to stop Molly’s heart. I was assured that both the Valium I had been given and the anaesthesia I would receive would both cross the placenta, and that Molly would feel no pain. She rubbed my back while explaining, and it was so comforting. I wanted my mom with me, but I was not speaking to my mom, and Tanya was a fair substitute.

I knew from prior internet research that Geoff wouldn’t be able to be with me. When I had learned that at home, I had been very frightened but Tanya said she’d be with me the whole time, and I felt okay about that. I was led down a short hallway to a room with an exam table and a chair for Tanya. Everything looked old, but clean. I asked Tanya if it were possible that I’d die, and she said no, they were there to take care of me. The doctor entered.

“I read your story,” he said to me, holding up a photocopied document. It was something I’d written at Geoff’s behest, an application for financial assistance that I’m not sure we were ever granted. “I am so sorry.”

They started an IV, which I didn’t even really register. I have tiny veins, and they always have to dig around to find them, but it has never bothered me.

“I promise I’ll take care of you,” the doctor said, and took my other hand. I felt very safe, even though a nurse had wheeled in a tray of shiny and intimidating array of implements.

“When are you going to start?” I asked him. He told me they were finished, startling me back to wakefulness. “Where’s Geoff?” I asked them.

I was back in the waiting room, in Geoff’s arms sobbing. I couldn’t believe Molly was gone.

Tanya had said it would be best if we stayed at a hotel that night in case I went into labor, and said the clinic would cover the cost. I wanted to go home. We weren’t too far away, as the clinic was in the southern part of Tacoma and I wanted my cat (not the little cat I talk about now, a different cat named Bandit). After some discussion, it was decided that that would be okay. Tanya gave me her cell phone number to call in case I did start having contractions, and I was instructed to eat lightly, but no food or drink past 8pm. I was given a script for painkillers.

That night was horrendous. Brutally painful cramps wracked my body. Geoff called Tanya to see if a heating pad (!) would help — stupidly, since I had been told no food or drink, we assumed I couldn’t take the painkillers, even though I’d been told to take my psychotropics as normal. Tanya said a heating pad would probably be useless, that she was so sorry but I just had to get through it.

I slept the whole drive up to Tacoma the next day. Again, Geoff dealt with the intercom as I stared bewilderingly at the protesters, wondering if they knew I’d do anything not to be there right then, and that my baby was already dead, and Tanya again came bustling out and whisked us inside. I couldn’t stop crying. There was a bruised and tender spot on my abdomen. They had said they’d stop her heart with an injection either in my abdomen or vagina, and I guessed they had done it in my abdomen, but I didn’t ask. Valium materialized. We were led to the private waiting room, Geoff again had some coffee — I wanted a cup so badly! We went into an office, where I was given Cytotec to dissolve in my cheeks to further soften my cervix. The pain was unbelievable. We signed more forms that I didn’t read, and I think that’s when we actually paid for the procedure. I decided Tanya was an angel of some sorts. I remember having to wait a while so the pills in my cheeks could start working, and being left for awhile watching COPS on the television in the now familiar waiting room. Geoff and I live a TV free life, so it seemed so novel and ultimately meaningless. Finally, Tanya came to bring me back to the same room. This time, I was terrified of being separated from Geoff.

I laid down on the table again. Tanya said she had a question, and anything I answered would be okay, but they were specifically looking for fetal tissue donations from women taking Category C medications during pregnancy (this meant there was not a lot of information to prove or disprove the medication’s safety during pregnancy), and my fistfuls of psych meds qualified me. It suddenly occurred to me why I had spent months researching the safety of my meds, and come up with no satisfying answers — it’s fucking unethical to test medications on pregnant women, duh. I signed my consent in hopes that Molly’s remains could be used to help other women like me. We had the option of cremation, but I was not okay enough to set that up and assumed it would be too expensive anyway.

“Good for you!” Tanya exclaimed as I signed the form, “This will really help someone.” She kind of shook my arm in her excitement. I hadn’t discussed this decision with Geoff, but was a little glad that the decision had been left to me. It was our baby to be sure, but my body. I know my husband well, though, and knew he’d accede to my wishes on the matter.

They started messing around with the IV and my recalcitrant veins and Tanya asked if I had any pets. I felt a rush of energy, and started enthusiastically telling her about Bandit and how she loved me but growled ferociously when Geoff tried to pet her, and then I was waking up again and they said I could start healing now. I felt physically worn out, in a lot of pain and they put something in the IV to help me feel better and started taking that out. I felt suddenly warm and fuzzy, and I practically ran back to the waiting room into Geoff’s arms to cry some more.

I’m sorry, but every so often I have to write out what happened those two days. I’ve described my eighteen week abortion over and over, and this time I really wanted to focus on the kindness and compassion of the staff at the abortion clinic because these really are our frontline warriors in the fight for women’s right to maintain autonomy over their own bodies and make decisions that are right for herself and her family in regards to reproduction. I was right; Tanya is an angel and I’ll never forget her or her tenderness or her soothing embraces (and I’m not one who is normally okay with physically affectionate gestures from strangers) and the doctor who performed the procedure was someone I feel fortunate to have on our team. Tanya called several times over the next few weeks to make sure I was physically and emotionally okay…my physical wellbeing was perfect with no complications but three years later, I am still struggling with grief. These people stood by my side in my darkest hour, and I will never stop being grateful.


My period has been starting and stopping for three days now, but it seems to have stopped for good now. Whatever, close enough. Although I’m confused as to when exactly CD 1 would be, I’m starting letrozole tonight. I’m sure my lining is fucked up post-D&C, so I’m feeling pretty discouraged about the whole cycle but fuck everything anyways.

I’m in a foul mood already. I randomly threw up my anxiety medication this morning, and the world seems like pure bullshit with our illegitimately elected President and all of that. I’m not quite sure why I have a burning need to bring a child into this fucked up society, but I do. Against all odds, I believe in love and although I shittalk the brutal universe at every opportunity, I still believe that life is a beautiful and precious thing.

It occurred to me this morning that I have spent 47 weeks of my life pregnant (that’s minus the two freebie weeks you get with each pregnancy) and I do not have a living child. A full term pregnancy is about forty weeks. This strikes me as tragic, and self-pity sneaks in to ruin this already shitty morning. Geoff ran off to be social for awhile, and I’m here wondering if I can pull myself together enough to visit Don. I swallow another Restoril to replace the one I puked up. Maybe I’m getting sick? Ha. I haven’t been sick for a single day since I started dating Geoff. True love must bolster your immune system or something. I don’t know, sounds good in theory.

My little cat curls up with me. If he weren’t such an aggressively needy little thing, I’d become a cat lady and get more cats. But he’s enough to handle on his own, and he keeps me going through the toughest of times. I wish I could be satisfied with only his companionship, but I have a desperate need for human interaction — only when I try to interact with people, everything goes so so wrong. I cry, I get triggered, I have to run away in defeat and the loneliness just festers. Above all, I want a family. When my parents die, there will be no one around to remember my happy childhood, or my deceased sister. I miss her terribly these days; I long for one last conversation or at least some reassurance that in the next plane of existence, I will see her again. My parents are okay with just seeing me four days a year. What the fuck happened to us? We really were so happy.

And no matter how hard I work at it, I can’t seem to have a baby….


I’m feeling rather defeated today. Maybe this is how I’ll feel for the next five months; maybe I won’t get a break. I had forgotten what a beast depression was — usually I have issues with mania, and I’ve been grieving for years now but this is flat out, unglamorous, clinical depression, no doubt about it. I wonder when my psychiatrist will be back from Hawaii, whether she’ll be resistant to increasing my Paxil once again out of fear of pushing too far and making me manic. Don’t get me wrong, a little hypomania would be A-okay with me but my full-blown manias lead to bizarre and possibly dangerous behaviors when my brain splits from reality. I don’t need that, but this horrible melancholy is almost as bad.

And I’ve yet to swallow my two tablets of letrozole. That’ll be tonight, before bedtime, so cross your fingers and pray that three days of on and off bleeding counts as a true period. I just have to keep going…I’ve promised myself that much. Scruffy hesitates for a second before firing up his glass pipe and I’m unsure I can rely on the weirdo spurts of hope he bestows upon me in between drug and alcohol benders. You can kill the pain, he whispers, but I’m beyond his kind of chemical assistance. There is not one drug out there that is powerful enough to kill this pain and I’m confident I can maintain my sobriety as I near the end of this chapter in my life. Of course, since I got clean there are new drugs that I never had the opportunity to indulge in…but I figure at not-quite-forty, my days of experimentation are behind me.

I don’t think Paxil is strong enough to counteract the letrozole blues, either, for that matter. So, more suffering. That’s just the way it is, and there’s no guarantee that it will be rewarded.


I wish my mom wasn’t mad at me all the time these days. She really did used to be such a gentle soul, but life has hardened her like it’s done me. I know she disapproves of everything I do now, but I also know she truly does not want me to get hurt and expresses this by constantly reminding me that everything I do is wrong. I am, as I mentioned previously, not-quite-forty and should have fortified myself enough by now to not long for a tender word from my mom, but lately I’ve been feeling very much like a lost and injured child who cannot even make the simplest of decisions. And the contempt I hear in my mother’s voice every time I speak with her smarts.


…and I just tossed back my first dose of Femara. I hope I don’t get my real period in two days. I think my uterus still needs time to recover from my d&c, so all this worrying is probably for naught. Scruffy is passed out cold.